Raise your hand if you've heard the term "clinical trials". Okay, now keep your hand up if you aren't really sure what they are or what the purpose of them is. There are a lot of hands still in the air!
There is a lot of talk in journals and on websites that keep up with cancer research that mentions clinical trials. When a patient is starting to head down the road of treatment, it's one of the options that could be presented by their oncologist... but what does it mean to join a trial? Where are they located? And, most important for some patients - how much will it cost?
Clinical trials are available for virtually every type or stage of cancer diagnosis. To be accepted into a trial means that there is active research being conducted on your specific cancer type, stage of development, or treatment plan. Sometimes they are set up to test a new combination of medications, and other times they are more unique, like the
one currently being conducted at UAMS where women's tears are being captured and tested for proteins that may point to the development of breast cancer.
Many patients see trials as a "last resort" option, only to be looked into when traditional treatments don't provide the desired recovery results. But more and more cancer clinics are putting together staff who can do the research and management that is necessary to develop and manage top-notch clinical trials program on a local level, providing access from the very beginning of a treatment plan.
At HOPE, Inc. we have a licensed RN on staff who manages twelve clinical trials for the patients referred to us by oncologists at Highland's Oncology Group in Fayetteville and Bentonville. Since these trials are managed and performed here in NW Arkansas, our patients are able to benefit from cutting-edge research and still sleep in their own beds at night.
Not having to travel to a distant medical facility like MD Anderson in Houston or the Mayo Clinic in Minnesota is not only emotionally beneficial for our patients, but it takes a potentially HUGE burden off of their budget. Recently, we calculated the estimated cost of participating in a clinical trial at the University of Arkansas for Medical Sciences in Little Rock, Arkansas and came up with the following:
Mileage Expenses: $.585 (IRS rate) x 400 miles = $234 x min. of 25 trips =
$5,850Lodging/Meals for a three day stay: $136 (IRS Per Diem Rate) x 75 (3 days per trip) =
$10,2003 days lost wages (24 total hours) = 431.76 x 25 trips =
$10,794(based on average household median income for Arkansas: $37,420 = $17.99 per hour)
Total Annual Expense Per Patient: $26,844Remember, this is only calculating the costs for a trial conducted three hours away, and doesn't even include the cost to a caregiver for
their time off work, food, and lodging on the trip. Then there are the regular medications and treatments and doctors' visits required to maintain the standard of care...
Now you can see what one of our patients meant when she recently told us that her first thought upon receiving her diagnosis of colon cancer was
"I can't afford to have cancer."Help us provide hope for people in Northwest Arkansas living with cancer.
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